In the garden, the Clematis Montana is putting on a magnificent show as usual, it's a shame that the weather is a bit too damp to go outside and enjoy it.
Yesterday we had a meeting with Steven's paediatrician. The reason for this, was to hand Steven over to the care of an adult physician, but unfortunately it is difficult to find one able to cope with his complex medical needs. The upshot is that if he needs hospital admission I can still take him to the childrens' assessment unit (he has open access) for a while at least, which is a great relief. I wasn't relishing the thought of coping on an adult ward. At least he is small for his age and still very childlike.